Disability Data Justice Toolkit
Overview
Data equity is a set of principles and practices that guide the collection and reporting of data so that it is without bias or exclusion; an imperative for public administration.
Data justice is a social movement framework that examines how data reflects and reinforces structural inequalities, emphasizing its unequal impact on different communities. It explores how digital information represents—or omits—marginalized groups and how these communities access information. Data justice informs data governance by exposing and addressing power imbalances in data management. It also promotes equitable design through participatory practices that engage communities and develop alternative infrastructures to empower those historically marginalized.
Disability data justice begins with a critique of all forms of data ableism and prioritizes the democratization of data and digital literacy from the perspective of diverse disability communities. Disability data justice insists on moving beyond mere access to information to the co-production of knowledge, community-based education, and social movement learning.
Data Dashboards
Let us know of any dashboards you would like to see added
Resources
Public Comment Letters
Blog Posts
Infographics
In the Media
Disability Data
Justice Collective
We invite scholars, data justice advocates, and community organizers to join us in building the Disability Data Justice Collective—a grassroots initiative committed to reimagining how data is collected, used, and governed in ways that uphold the rights and dignity of disabled people, especially those at the margins. This is an open and evolving space where we will collectively shape the vision, priorities, and strategies of our work, centering disability justice principles and resisting the extractive, oppressive structures that have long defined data systems. Whether you bring research expertise, lived experience, advocacy skills, or just a deep commitment to change, your voice matters here. Together, we’ll co-create a movement for accountable, community-centered data that serves rather than surveils, empowers rather than erases. If this calls to you, come build with us.