Disability Data Justice Resources

CRDJ signed on to a letter submitted by the Leadership Conference on Civil and Human Rights, our Census Task Force co-chairs, Asian Americans Advancing Justice – AAJC and NALEO Educational Fund, and other undersigned organizations to comment on proposed changes to the American Community Survey (ACS) and Puerto Rico Community Survey (PRCS).

As artificial intelligence increasingly shapes how disabled people are assessed, governed, and excluded, a growing body of reports has emerged to address its impacts. Reading these reports together reveals not an AI and disability ecosystem, but the urgent need to build a coordinated, justice-centered one.

This blog examines how Trump’s new “Making Health Technology Great Again” policy transforms healthcare innovation into medicalized surveillance, centralizing health data in ways that threaten the privacy and rights of disabled people, immigrants, and low-income communities.

Published in the Chicago Tribune; originally titled “When Health Becomes a Crime: The Dangerous Convergence of Trump’s Health Data & Policing Policies.”

Disabled women, especially those who are bisexual, trans, non-binary, and/or people of color, face some of the steepest and most overlooked wage gaps in the U.S. economy. And the overlap matters!

This public comment letter opposes proposed changes to Section 503 regulations, warning that eliminating disability self-identification, utilization goals, and accountability measures would weaken civil rights protections for disabled workers.

How Trump-era policies use AI and federal data sharing to merge health data with policing, criminalize mental health and disability, and reinforce eugenic narratives that endanger disabled people, immigrants, and communities of color.

This resource examines Trump’s “Making Health Technology Great Again” policy, showing how AI-driven data sharing turns health information into a tool of government surveillance that endangers privacy, justice, and marginalized communities.

This study describes the potential of a comprehensive disability status question to improve the measurement of disability.

This policy brief examines how racism and ableism shape maternal care deserts for Black disabled women and recommends advancing the Reproductive Equity Act, disability data equity, provider training, and community-based oversight.

We break down how the DOGE initiative claims to save money but actually drives long-term economic harm through cuts to public programs, jobs, and services. It reveals the hidden costs and urges action to protect communities.

From his earliest days on the campaign trail to his 2025 return to executive power, Trump and his administration have engaged in a relentless campaign to manipulate public perception, distort reality, and sow division.

Content from: Aboulafia, A., Bogen, M., & Swenor, B. K. (2024). To Reduce Disability Bias in Technology, Start With Disability Data. Center for Democracy & Technology.

The recent State of the Union confirmed that the Department of Government Efficiency can keep reshaping federal operations, but at what cost? Our Data Breach Tool shows how its actions have weakened data security, transparency, and accountability.

Leaked federal data isn’t just about security— it’s a tool for dismantling civil rights, eroding protections, and deepening systemic inequities.

The Census Bureau welcomes Kate Caldwell for a livestreamed panel on the challenges of and community feedback on disability data collection.

This open letter calls on U.S. presidential candidates to adopt comprehensive disability policy platforms, outlining key priorities across education, data, criminal, and climate justice alongside actionable federal policy recommendations.

This public comment letter responds to the White House OSTP Federal Evidence Agenda on Disability Equity, offering recommendations to strengthen disability data collection, intersectional analysis, and inclusive research practices.

In INside the OUTcomes, Kate Caldwell and Bonnie Swenor discuss why accurate, inclusive disability data is vital for justice and equity.

This public comment letter opposes proposed changes to U.S. Census disability questions, warning they would undermine data reliability and contribute to an undercount of disabled people, particularly in the wake of COVID-19.